The Lymphoedema Support Network

The Lymphoedema Support Network (LSN) takes the lead role in educating and supporting other patients with this condition by providing a high standard of information and promoting self-help. Since its inception in 1991, when there was very little information or help available for patients, the LSN has evolved into an independent and influential charity. It is the only national patient-led organisation offering information and support to people with this condition and has a unique understanding of the patients' experience.

Lymphoedema is a swelling that develops as a result of an impaired lymphatic system. This may be as a result of the lymphatic system not developing properly, or through damage, trauma, or as a result of cancer surgery. It can affect any part of the body but is most commonly seen in an arm or a leg. Although thought to be relatively uncommon, a recent study has estimated that at least 100,000 people in the UK may be affected by this condition.

The Charity has become the largest information resource for lymphoedema in the UK, producing an on-going series of fact sheets, initially for patients; however, the high standard of this information has lead to healthcare professionals ordering them for use in hospitals and Lymphoedema clinics. Two self-help videos produced for patients have also proved to be a valuable resource and teaching aid for healthcare professionals. In addition, the Charity operates an information and support telephone line, produces a quarterly newsletter, maintains a website, promotes the formation of self-help support groups around the country and campaigns at national level for improved standards of care.